Hi,
My 10 year old daughter has a real problem. For 7 years (since she was 3) she has suffered recurrent urinary tract infections. We have had all he physiological investigations (bladder capacity, kidney function etc) with no indication of abnormality. She has been on antibiotics of one sort or another for all of this time, either on a prophylactic basis or to fight a specific infection.
To complicate matters, she is also soiling daily. Her underwear is either coated with a smear of poo or has actual lumps in it. This, of course, smells.
We have been back and forth to doctors and paediatricians for years. In the latest part of the saga they have suggested she take a stool softener (Movicol) and keep a poo diary, which we have done (for 8 months). She appears not to be constipated as the doctors have manipulated her tummy and found no obvious lumps or blockages. In addition, the stool softener seems to give her diarrhoea which then leads to infection in her urethra and another course of antibiotics.
I am utterly frustrated with the medical profession and their apparent inability to treat my child. Her confidence is battered and there are times when I cannot help but show her my frustration. I know this is counterproductive but sometimes I just can't help it.
She has started to hide her soiled underwear.
At our last visit to the paediatrician, I insisted they try something else but all I received in response was a blank stare and was told to carry on with the stool softener.
I mentioned to them the possibility of enemas etc (without naming Soiling Solutions) and the doctor looked at me in disgust - as if I had suggested a medieval punishment!
Can you please give me some pointers on what to do next?
Many many thanks, Michele
Michele--Your doctor’s reaction, unfortunately, is fairly typical. They are themselves subject to the same cultural forces as we all are about this very private area of the body and the elimination of highly malodorous bodily wastes, especially poo, which is, quite literally, a biohazard for its disease spreading potential. You already know this from your daughter’s repeated bladder infections. Fecal Incontinence is the number two reason why the elderly are placed into nursing homes; many adults suffering from Irritable Bowel Syndrome (IBS) are afraid to leave their homes; and even loving moms like you find it hard to maintain an unemotional response to poo accidents. Verbal and nonverbal signs just have a way of breaking out; smell is a very primitive disgust “trigger”. Your child hiding her soiled underwear is just another sign that she is picking up on the same cultural reactions. This problem, encopresis, can result in physical and mental emotional problems that must be addressed. In effect you all are caught in a web of medieval punishment, but we should expect or demand more of our physicians when they have so much ability to help you and other children by being more open to the Soiling Solutions protocol. So be kinder to yourself and become a strong advocate or mother bear for your child.
I developed the Soiling Solutions(SS) protocol while I was an invited visiting professor in Perth, Australia and began clinical applications when I returned to the USA. I produced a manual in 1998 for sale over the internet at www.soilingsolutions.com which you have apparently discovered. The Clean Kid Manual (CKM) has undergone three revisions largely based on feedback from parents on the exclusive Soiling Solutions Forum which comes with a manual purchase. I cannot lend understanding and detailed procedures for an adequate home-based treatment except through that manual which you or your health service could purchase from my website (the store offers discounts for medical professionals). I suggest you read that manual and proceed with treatment. If your doctor rejects assistance or agreement with following the protocol, tell him that you are placing him on the back burner and that you will report the results to him later. I would be happy to talk with him via Skype at “SoilingSolutions” or a phone call. Share this www.encopresis.org Q & A column with him and he can read many recent parent reports by clicking on the “User Comments” link on the SS website. I will attach here my medical journal article on the history and explanation of Soiling Solutions, editorials regarding it, and a picture of my toilet stool trained cat which kids love. Maybe, making copies for him when you inform him of your intent may help him toward some understanding, if not approval. Look, they have failed you, period! You have a right to be an angry mother bear. You could show him a copy of my manual along with your diary records of results later on. My program will end the soiling within 1-2 weeks and you will be on a forum with other parents using the manual (some 300+ parents)! Fortunately, even with older children, the mental and emotional consequences quickly fall away with success. Let all of us know your doctor’s reactions if you follow through using the Comments option below this response! DrC.
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